Why Eurohearts
Since 1994, a so-called EuroHearts Conferences has been held every two years by turns in different European countries, organised by the respective national GUCH associations and in accordance with the European Congenital Heart Group. This conference is the most important platform for people with congenital heart defects to exchange experience and knowledge and to meet.
- Exchange of experience is important to affected people so that they know that they are not alone with their situation, dreams, hopes, fears and constraints. The mutual solidarity strengthens their self-confidence and helps them to handle their disease and problems, especially in emotional distress.
- Learning from each other – especially from the doctor-patient-relationship - is also very important as advances in cardiac surgery and care have only been achieved lately. Very often, GUCH-doctors have known their patients from birth and their relationship grows over the years, and thus their relationship is very close, hearty and even intimate. This is important for the patient to have confidence, and is enriching for the doctor as it gives him/her valuable opportunities to learn as there is not a single patent remedy for all GUCHs.
- International cooperation and media exposure is also fundamental for this still unexplored medical field and gives GUCHs the possibility to call attention to their situation and needs.
ToughHearts Conference
We are GUCHs, Grown-Ups with Congenital Heart defects. In 1999, we set up our own association in Switzerland, CUORE MATTO, which regularly organises meetings, lectures and seminars for its members who are all affected by a congenital heart defect.
At present, we have the great pleasure to be host of the EuroHearts Conference in Switzerland, the Tough Hearts Conference 2014 which started on July 20th 2014 and ended on Friday 25th 2014.
The Tough Hearts Conference 2014 takes place in Baar in the canton of Zug / Switzerland, and welcomes delegates from many different GUCH-organisations from Europe and around the world.
The Conference Programme includes interesting and informative lectures and round tables of GUCH-specialists and cardiologists, instructive workshops and exciting leisure activities. Being together with GUCHs from so many different places and backgrounds is essential and enriching for all of us.
Beside very concrete medical advice and news concerning GUCH-issues, the Tough Hearts Conference 2014 focuses on the dealing with constraints and sacrifice and the living with pain and emotional distress, all subjects which characterise a life with a congenital defect or disease. The importance of the doctor-patient-relationship and the fact that they learn from each other is also highlighted during this conference.
In addition, the Tough Hearts Conference 2014 is a jubilee conference as it is 20 years since it has taken place for the first time and 10 years for the last time in Switzerland.
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